Board of Directors

The 2017 – 2018 Board of Directors of the CRF:


President – Chris Moen, MD
1st Vice-President – Neal Bench
2nd Vice-President – Stephanie Sims, MD
Treasurer – Tara Driscoll
Secretary – Danny Boren
At-Large – Jeff Benelli
At-Large – John Trott


Tim Galvin
Kate Hillier-Edwards
Mark Huyser-Wierenga
Michael Laengsfeld
Michael McCarthy
Jodi McLaughlin
Michael Mullen
John Oster
Janet Rowley
Marion Scott
Lisa Volker
Nicki Campbell

Choroideremia Research Foundation Staff:

Eric Hartman – Director of Advocacy
Cory MacDonald – Director of Patient Engagement
Beth Foss – Interim Operational Executive Director

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Tell Your Friends About Choroideremia

The Choroideremia Research Foundation Inc. is an international, non-profit organization dedicated to raising funds to find a treatment or cure for Choroideremia, a rare inherited retinal degenerative disease that causes blindness.

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