Team CHM’s World Champion

What length with a mother go to try and save her son’s sight? For Stephanie Sims that answer is 140.6 miles of swimming, biking and running at the 2017 IRONMAN World Championships in Kona, Hawaii.

Stephanie Sims competes in IRONMAN Wolrd Championship for Team CHMStephanie’s IRONMAN World Championship journey began in 2016, when she raced on Team CHM’s IRONMAN Wisconsin team, earning her entry to the coveted Kona race. For the last two years, Stephanie has spent countless hours training for these races and raising funds in support of the Choroideremia Research Foundation.

Stephanie’s journey to Kona on behalf of Team CHM was personal. She is a carrier of choroideremia and in addition to her father and other family members, Stephanie’s son Sullivan has CHM. Stephanie is racing for a reason: to make a difference in the fight to save Sullivan’s sight and the sight of others with CHM.

Stephanie, thank you for being our champion. Because of you, we are closer to finding treatment and a cure for CHM.



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The Choroideremia Research Foundation Inc. is an international, non-profit organization dedicated to raising funds to find a treatment or cure for Choroideremia, a rare inherited retinal degenerative disease that causes blindness.

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