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Run, Walk or Bike!

If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end vision loss caused by CHM. You can be a part of Team CHM where ever you live, in any athletic event you choose.

Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Everyone who conducts a fundraiser for CRF receives a complimentary Team CHM t-shirt! Or, if you are ready to start fundraising, you can Join Team CHM Now.

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Host a Fundraiser

Host a Fundraiser

Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!

Creating an online fundraising page is now easier than ever!

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CRF Membership

The Choroideremia Research Foundation is a member-based organization and is open to any interested person.

Please click on the link below to become a CRF Member and for more information on membership.

Become a CRF Member!

Volunteer Opportunities

Thank you for your interest in volunteering with the Choroideremia Research Foundation.

C.A.R.S. Program

Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.


Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.

Leadership Committees

Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:

  • Publications and Communications – marketing, graphic design, video production and social media
  • Audit/Finance – budgeting, investments, nonprofit accounting
  • Conference – project management, organizational skills, decorating, administrative
  • Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
  • Fundraising – sales, good phone and email skills, and a sparkling personality!
  • Research –  experience in healthcare, data analytics, and science

Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Data Entry

Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Conference and Regional Meeting Assistance

CRF regularly hosts conferences and regional meetings throughout the US and internationally. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Cory MacDonald by email or at 800-210-0233 ext. 1.

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What’s NEW?

  • Ian Macdonald

CRF expands support for promising research path

June 20, 2023, 09:00 GMT Ian MacDonald, MD, CM Twin brothers have identical CHM mutation but one brother has no symptoms Dr. MacDonald’s research continues to explore promising paths to increase the research [...]