Get Involved

Team CHM event photo
Team CHM event photo
Team CHM event photo
Team CHM event photo
Team CHM event photo
Team CHM event photo
Join Team CHM white text and icon

If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end blindness caused by CHM. You can be a part of Team CHM where ever you live, in any athletic event you choose.

Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Or, if you are ready to start fundraising, you can Join Team CHM Now.

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Support Team CHM by purchasing CHM apparel for both men and women, bags or other items. All Team CHM fundraisers will receive a free t-shirt to wear as they train and participate in their event.

Fundraising Bake Sale
Host a Fundraiser

Host a Fundraiser

Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!

Creating an online fundraising page is now easier than ever!

Want more tips on running an event? View our Fundraising Toolkit

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CRF Membership

The Choroideremia Research Foundation is a member-based organization. Membership is open to any interested person. Membership is by household and covers all adult (18+) members of your household.

Please join us today – we will keep you informed of recent updates in research and other news related to CHM. Information shared with us is confidential.

CRF Membership Levels

FREE Membership (requires annual renewal): Benefits include: membership voting privileges; annual conference call; and quarterly newsletter and annual report (mail or email option). Become a FREE Member by clicking here.

Standard Membership (requires annual renewal): membership is $60 annually and benefits include: membership voting privileges; annual conference call; quarterly newsletter and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Standard Member by clicking here.

Standard Membership (automatic renewal): membership is $5 a month and membership automatically renews on a month-to-month basis. Benefits include: membership voting privileges; annual conference call; quarterly newsletter and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Recurring Standard Member by clicking here.

Lifetime Membership*: membership is a one-time cost of $600. Benefits include: membership voting privileges; annual conference call; quarterly newsletter and annual report (mail or email option); recognition on CRF’s website, social media and annual report; 25% off merchandise and conference; annual personal letter or call from key staff or board member; invitation to VIP events** at regional meetings and conferences including CRF Board, CRF Scientific Advisory Board, and researchers meetings. Become a Lifetime Member by clicking here.

*Existing Lifetime Members will receive new Lifetime Membership level benefits and require no further action.
**Individuals may also qualify to attend VIP Events by serving as a volunteer with, or fundraiser for, CRF.

Membership level chart.

Join the CHM Registry

Join the CHM Patient Registry by clicking on your preferred language:
English, French, German, Portuguese, or Spanish

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What is the CHM Registry?
The Registry is a collection of names and basic contact information of people around the world who have CHM.

Why Should I Join?

• Registry participants will be the first to learn about clinical trials and study opportunities.”
• Allow researchers to gain depersonalized information on patients.
• Opportunity to participate in patient preference and experience surveys.
• Improves chances of drug development.

How Long will Sign-up Take?
Less than 5 minutes!

Will My Information be Shared?
All of the information provided will be treated as confidential. Only diagnoses – not names or contact information – will be shared with researchers.

Volunteer Opportunities

Thank you for your interest in volunteering with the Choroideremia Research Foundation.

C.A.R.S. Program

Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.

Fundraiser

Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Leadership Committees

Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:

  • Publications and Communications – marketing, graphic design, video production and social media
  • Audit/Finance – budgeting, investments, nonprofit accounting
  • Conference – project management, organizational skills, decorating, administrative
  • Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
  • Fundraising – sales, good phone and email skills, and a sparkling personality!

Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Data Entry

Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Conference Assistance

Every two years, CRF hosts a multi-day conference at a different location in the United States. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Beth Foss by email or at 800-210-0211 ext. 3.

Upcoming Events

Click link to view all CRF Events on Facebook

DONATE

The search for a cure to CHM is not possible without our generous supporters.