Be Part of Our Community
Run, Walk or Bike!
If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end vision loss caused by CHM. You can be a part of Team CHM where ever you live, in any athletic event you choose.
Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Everyone who conducts a fundraiser for CRF receives a complimentary Team CHM t-shirt! Or, if you are ready to start fundraising, you can Join Team CHM Now.
Host a Fundraiser
Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!
Creating an online fundraising page is now easier than ever!
Want more tips on running an event? View our Fundraising Toolkit
CRF Membership
The Choroideremia Research Foundation is a member-based organization. Membership is open to any interested person. Membership is by household and covers all adult (18+) members of your household.
Please join us today – we will keep you informed of recent updates in research and other news related to CHM. Information shared with us is confidential.
CRF Membership Levels
FREE Membership (requires annual renewal): Benefits include: membership voting privileges; annual conference call; and quarterly newsletter with weekly e-newsletters and annual report (mail or email option). Become a FREE Member by clicking here.
Standard Membership (requires annual renewal): membership is $60 annually and benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Standard Member by clicking here.
Standard Membership (automatic renewal): membership is $5 a month and membership automatically renews on a month-to-month basis. Benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Recurring Standard Member by clicking here.
Lifetime Membership*: membership is a one-time cost of $600. Benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; 25% off merchandise and conference; annual personal letter or call from key staff or board member; invitation to networking events** at regional meetings and conferences including CRF Board, CRF Scientific Advisory Board, and researchers meetings. Become a Lifetime Member by clicking here.
* Existing Lifetime Members will receive the new benefits of that level & require no further action.
** Individuals may also qualify to attend networking events by serving as a volunteer with, or fundraiser for, CRF.
Volunteer Opportunities
Thank you for your interest in volunteering with the Choroideremia Research Foundation.
C.A.R.S. Program
Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Fundraiser
Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Leadership Committees
Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:
- Publications and Communications – marketing, graphic design, video production and social media
- Audit/Finance – budgeting, investments, nonprofit accounting
- Conference – project management, organizational skills, decorating, administrative
- Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
- Fundraising – sales, good phone and email skills, and a sparkling personality!
- Research – experience in healthcare, data analytics, and science
Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Data Entry
Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Conference Assistance
CRF regularly hosts conferences and regional meetings throughout the US and internationally. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Beth Foss by email or at 800-210-0211 ext. 3.
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News & Updates
Upcoming CRF Events
Click link to view all CRF Events on Facebook
What’s NEW?
CRF expands research support into female carriers of rare inherited retinal disease
February 15, 2023, 17:09 GMT Sena Gocuk, recipient of The Benelli Family Research Award Research will identify the biomarker to predict disease progression We are very excited to support Ms. Gocuk’s work to [...]
CRF invites proposals for the annual Randy Wheelock Research Award
January 10, 2023, 12:00 GMT Members of the International Choroideremia Research Network Proposals related to finding a cure for a rare inherited retinal disease are due by March 31, 2023 SPRINGFIELD, MA, UNITED [...]
CRF expands scientific advisory board & commitment to rate retinal disease research
November 15, 2022, 16:41 GMT Five New Members Join the Board with Two New Leadership Positions Created Maureen McCall, Ph.D., CRF Scientific Advisory Board member The expanded Scientific Advisory Board will help us to [...]
Raising awareness for a rare degenerative retinal disease at the AAOPT Conference in San Diego, October 26-29, 2022
October 13, 2022, 00:14 GMT CRF celebrates 22 years of research progress and unwavering commitment to find a cure for a retinal disease that causes blindness "Vision care providers are often the first professionals in [...]
Bhanu P. Telugu, PhD receives 3rd annual CRF Randy Wheelock Research Award
Bhanu P. Telugu, PhD, Randy Wheelock Award Winner September 13, 2022, 11:00 GMT Choroideremia Research Foundation supports development of first CHM porcine model to advance research for choroideremia, a rare inherited retinal disease [...]
CRF co-funds equipment to support research of CHM
Jasleen Jolly, DPhil MSc BSc (Hons) MCOptom August 18, 2022, 10:00 GMT MAIA Microperimeter System is a Vital Resource for Clinical Trial Measurement and Tracking of Chorideremia Eye Disease Studies Dr. Jolly’s work [...]
The CRF 2022 International Conference was a bright light on new research into CHM
August 14, 2022, 08:09 GMT 2022 CRF International Conference Top Researchers in the Field from Around the World Gather with Patients and Families We are thrilled with the success of this year’s conferences, [...]
Choroideremia Research Foundation raise funds for disease
June 17, 2022, 06:12 AM EDT — FAIRPORT, N.Y. (WROC) — Officials with the Choroideremia Research Foundation announced their annual international conference at the Woodcliff Hotel & Spa will continue into Friday. The purpose of [...]