Be Part of Our Community
Run, Walk or Bike!
If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end vision loss caused by CHM. You can be a part of Team CHM where ever you live, in any athletic event you choose.
Team CHM also annually participates in the Penn Orphan Disease Center’s Million Dollar Bike Ride and the TCS New York City Marathon.
Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Everyone who conducts a fundraiser for CRF receives a complimentary Team CHM t-shirt! Or, if you are ready to start fundraising, you can Join Team CHM Now.
Host a Fundraiser
Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!
Creating an online fundraising page is now easier than ever!
CRF Membership
The Choroideremia Research Foundation is a member-based organization and is open to any interested person.
Please click on the link below to become a CRF Member and for more information on membership.
Volunteer Opportunities
Thank you for your interest in volunteering with the Choroideremia Research Foundation.
C.A.R.S. Program
Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Fundraiser
Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Leadership Committees
Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:
- Publications and Communications – marketing, graphic design, video production and social media
- Audit/Finance – budgeting, investments, nonprofit accounting
- Conference – project management, organizational skills, decorating, administrative
- Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
- Fundraising – sales, good phone and email skills, and a sparkling personality!
- Research – experience in healthcare, data analytics, and science
Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Data Entry
Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Conference and Regional Meeting Assistance
CRF regularly hosts conferences and regional meetings throughout the US and internationally. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Cory MacDonald by email or at 800-210-0233 ext. 1.
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News & Updates
Upcoming CRF Events
Click link to view all CRF Events on Facebook
What’s NEW?
New Members Join the Board of Directors
October 19, 2023, 13:03 GMT New Members Join the Board of Directors Each of them brings important experiences from their accomplished professional lives that will enrich the thinking and decisions to be made in the [...]
Kiora Pharmaceuticals & CRF Partner to Advance Novel Choroideremia Treatment
Encinitas, California--(Newsfile Corp. - August 3, 2023) - Kiora Pharmaceuticals, Inc. (NASDAQ: KPRX), a clinical-stage ophthalmic pharmaceutical company developing novel therapeutics for patients with high unmet needs, and the Choroideremia Research Foundation (CRF), the largest [...]
CRF expands support for promising research path
June 20, 2023, 09:00 GMT Ian MacDonald, MD, CM Twin brothers have identical CHM mutation but one brother has no symptoms Dr. MacDonald’s research continues to explore promising paths to increase the research [...]
CRF expands research support into nonsense mutations of CHM
May 01, 2023, 00:00 GMT Dror Sharon, PhD, Hadassah-Hebrew University Medical Center Shay Ben Aroya, PhD, Bar-Ilan University Focus on ADAR-based RNA editing in the retina Drs. Sharon and Aroya will [...]
Throssell-Hillier Families Research Award winners announced
March 23, 2023, 07:25 GMT CRF has funded approximately $5 million in research studies during its 23-year history. Research will focus on choroideremia nonsense mutations We are very excited to support a diverse [...]
CRF expands research support into female carriers of rare inherited retinal disease
February 15, 2023, 17:09 GMT Sena Gocuk, recipient of The Benelli Family Research Award Research will identify the biomarker to predict disease progression We are very excited to support Ms. Gocuk’s work to [...]
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