CRF has funded nearly $4 million in research on the causes and potential cures for choroideremia since being granted nonprofit status in 2000.
The organization hosts a two-day conference for patients and family every other year and a research/scientific symposium on alternating years. It also offers one-day regional meetings several times a year around the world. Webinars and interactive online chats are offered (and recorded) several times monthly on topics such as emotional support, research, assistive technology, clinical trials and genetic testing.
CRF hosts a CHM patient registry at https://www.curechm.org/chm-patient-registry/ The organization advocates for patients legislatively nationally and internationally, provides education for medical professionals, and offers information and one-on-one support to patients and family members.
To learn more about CRF’s 2020 accomplishments, please view our “State of the CRF” webinar: https://www.youtube.com/watch?v=JVad_8N0KnM&t=7s