Be Part of Our Community
From hope springs action. And our community is always ready to dive in. CRF fundraisers range from cross-country bike rides to walks, runs, and Dining in the Dark events among many others. Thanks to generous donors, we’ve raised over $5 million in research funding. Every single dollar helps accelerate the pace of vision-saving research.
Run, Walk or Bike!
If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end vision loss caused by CHM. You can be a part of Team CHM where ever you live, in any athletic event you choose.
Team CHM also annually participates in the Penn Orphan Disease Center’s Million Dollar Bike Ride and the TCS New York City Marathon.
Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Everyone who conducts a fundraiser for CRF receives a complimentary Team CHM t-shirt! Or, if you are ready to start fundraising, you can Join Team CHM Now.
Host a Fundraiser
Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!
Creating an online fundraising page is now easier than ever!
CRF Membership
The Choroideremia Research Foundation is a member-based organization and is open to any interested person.
Please click on the link below to become a CRF Member and for more information on membership.
Volunteer Opportunities
Thank you for your interest in volunteering with the Choroideremia Research Foundation.
C.A.R.S. Program
Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Fundraiser
Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Leadership Committees
Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:
- Publications and Communications – marketing, graphic design, video production and social media
- Audit/Finance – budgeting, investments, nonprofit accounting
- Conference – project management, organizational skills, decorating, administrative
- Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
- Fundraising – sales, good phone and email skills, and a sparkling personality!
- Research – experience in healthcare, data analytics, and science
Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Data Entry
Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Conference and Regional Meeting Assistance
CRF regularly hosts conferences and regional meetings throughout the US and internationally. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Cory MacDonald by email or at 800-210-0233 ext. 1.
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What’s NEW?
Grant Application Deadline: December 31, 2025 – Choroideremia Research Foundation
Read More: https://www.einpresswire.com/article/872601894/choroideremia-research-foundation-announces-grant-application-deadline-december-31-2025 The Choroideremia Research Foundation (CRF) announces the first cycle of 2026 research grants, with applications due by December 31, 2025. SPRINGFIELD, MA, UNITED STATES, December 4, 2025 /EINPresswire.com/ -- The Choroideremia Research [...]
Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award
Choroideremia Research Foundation Awards Alice Y. Zhang, MD, the 6th Annual Randy Wheelock Research Award Neal Bench, CRF President, awarding Alice Zhang, MD and colleagues the 2025 Randy Wheelock Award at UNC-Chapel Hill. CRF honors [...]
CRF Marks 25 Years of Progress, Research, and Community Support
The Choroideremia Research Foundation (CRF) Marks 25 Years of Progress, Research, and Community Support The CRF marks 25 years of research and global support. Founded in 2000, CRF has funded $6M in research and connected [...]
2025 CRF International Conference Unites Global CHM Community for Research, Education, and Connection
https://www.einpresswire.com/article/829424800/2025-crf-international-conference-unites-global-chm-community-for-research-education-and-connection Nearly 200 attendees from around the world gathered to advance research and support for those affected by choroideremia (CHM). SPRINGFIELD, MA, UNITED STATES, July 9, 2025 /EINPresswire.com/ -- The Choroideremia Research Foundation (CRF) successfully hosted its [...]
Choroideremia Research Foundation Announces Six New Global Grants to Accelerate Vision Science
https://www.einpresswire.com/article/819471616/choroideremia-research-foundation-announces-six-new-global-grants-to-accelerate-vision-science CRF awards six global grants to advance CHM research, spanning AI, gene editing, and more—driving progress toward treatments for this rare retinal disease. SPRINGFIELD, MA, UNITED STATES, June 6, 2025 /EINPresswire.com/ -- The Choroideremia [...]
Randy Wheelock Research Award 2025: CRF Invites Proposals
Proposals related to finding a cure for a rare inherited retinal disease are due by June 30, 2025. SPRINGFIELD, MA, UNITED STATES, April 21, 2025 /EINPresswire.com/ -- The Choroideremia Research Foundation (CRF) is pleased to [...]