Patient & Family Support
CRF offers a variety of ongoing opportunities to socialize online with your fellow CHM family members via Zoom. Regularly scheduled events include:
- Music Trivia
- Sports Trivia
- Beer Appreciation Club
- Book Club
- Moms of CHMers Chats
- CHMer Convos
- Holiday Parties
- … and more.
Please view our upcoming calendar of events on Facebook at: https://www.facebook.com/CureCHM/events or email Cory MacDonald for more information.
Choroideremia (CHM) https://www.facebook.com/groups/Choroideremia/
Choroideremia CHM for Understanding (International) https://www.facebook.com/groups/1388456481446308/?ref=bookmarks
Choroideremia Norway https://www.facebook.com/CHMNorthNorway/
Leben mit Choroideremia (German) https://www.facebook.com/groups/606431343168032/about/
Choroideremia Research Foundation Canada https://www.facebook.com/crfcanada/
Choroideremia Greece https://www.facebook.com/greecesopranochoroideremia.greece
UK Choroideremia Friends and Support https://www.facebook.com/groups/322013511944104
Coroideremia (Portugese) https://www.facebook.com/Coroideremia-164001050760710/
Asociación de Afectados por la COROIDEREMIA (Spanish) https://www.facebook.com/coroideremia/
CHM Moms for Each Other https://www.facebook.com/groups/334819910042088/
Spouses of Choroideremia https://www.facebook.com/groups/784934478268986/
Remember the Girls https://www.facebook.com/groups/rtgclosed
This group aims to break the stigma facing females impacted by X-linked conditions by providing them with tools to seek support, engage with research, and access family planning options, as well as by advocating for increased attention of medical professionals to the physical, emotional, and reproductive needs of this community.
WhatsApp / Twitter / Instagram
Join the conversation on the Choroidermia CHM chat on WhatsApp, on Twitter, and on Instagram.
Over 225 videos have been posted to CRF’s YouTube channel, https://www.youtube.com/curechm, with information on everything from guide dogs, to assistive technology, emotional/social support and education, interviews with other patients, family members and researchers, science updates, and much, much more!