Support Us
The search for a cure to choroideremia is not possible
without generous donors like you!
Click below to Donate Online —
Monthly Supporter
The Choroideremia Research Foundation’s urgent pursuit of a treatment or cure for choroideremia is only made possible by the generous donations of our supporters.
Becoming a sustaining Monthly Supporter is a perfect way to give a defined amount each month to help the CRF accelerate the pace of science and provide critical funds to researchers that will allow them to push forward toward a cure. These regular donations are automatically charged each month making it an easy and convenient way to give.
Tribute & Memorial Giving
Tribute and memorial donations can be made in honor or in remembrance of a special person or occasion, or in lieu of flowers allowing your family and friends to make donations directly to benefit CHM research, education and support services. The Choroideremia Research Foundation will issue a letter of thanks to all donors which will serve as a tax-deductible receipt. CRF can also provide you with a list of donors for you to acknowledge personally if desired.
To simply make a donation in honor of a loved one, or to create an online tribute giving page so that others can honor your loved one as well, please click here.
Shop to Donate
eBay for Charity enables sellers to donate a portion of their sales—and buyers to shop—while also supporting their favorite charities. Start a virtual tag sale to benefit CRF at eBay for Charity today.
We’ve partnered with the Roundup App which allows you to “round up” the change from your debit or credit card purchases and donate it to CRF. It is the nation’s leading spare change donation fundraising platform. Watch this YouTube video for more information!
Support the CRF mission with every purchase you make! Donate when shopping at over 7000 merchants by signing up with GOODSHOP . GOODSHOP likes to say that they have the most powerful coupons in the world. Not only do they provide the best shopping deals on the internet, but they will also make a donation to Choroideremia Research Foundation (CRF) whenever you make a purchase.
Matching Gifts
Many employers sponsor will match charitable contributions made by their employees. To find out if your company has a matching gift policy, please ask your human resources department, or you may review a partial list of companies that offer matching gifts here: Matching Gift Companies (PDF)
If your company is eligible, request a matching gift form from your employer, and send it completed and signed with your gift. CRF will do the rest. The impact of your gift may be doubled or possibly tripled! Some companies also match gifts made by retirees and/or spouses.
Estate Giving / Gifts of Stock
Remember the Choroideremia Research Foundation in your estate or with a planned gift to strengthen research efforts to find treatments and a cure so that future generations may never experience vision loss caused by CHM. The planned gifts below should not be taken as financial advice; please consult your personal financial advisor for additional information.
Bequests
A bequest is a gift from your estate or will—a transfer of cash, securities, or other property made through your estate plans. You can make a bequest to the Choroideremia Research Foundation by including language in your will or living trust leaving a portion of your estate to CRF. Bequests can be made for a specific amount, for a percentage of your estate, or for all or a portion of what is left after you have made bequests to your family. To make a gift from your estate, you must sign a new will or living trust instrument, add a codicil to your present will, or make an amendment to your present trust instrument.
Life Insurance
You can designate CRF as a beneficiary of a retirement plan or life insurance policy. To do so, contact the retirement plan administrator or life insurance company and complete the appropriate beneficiary designation form.
Stocks
Make a larger impact by gifting stock and donating long-term appreciated securities, including stock, bonds and mutual funds, directly to CRF. Compared with donating cash, or selling your appreciated securities and contributing the after-tax proceeds, you may potentially increase your gift and tax donation.
To donate appreciated stock, contact CRF for their brokerage information. Next, instruct your broker to transfer the shares to the charity’s account and keep detailed records, including a receipt. You can then claim a tax deduction for the fair market value of the stock on your tax return. Alternatively, a donor-advised fund (DAF) can be used to receive the stock, providing an immediate tax deduction and allowing you to decide on the charity recipients later.
Step 1: Prepare for the donation
- Choose the right stock: Select stocks you’ve held for over a year that have appreciated in value to maximize your tax deduction. You can only deduct the original purchase price for stocks held less than a year.
- Verify the charity: Ensure the charity is a qualified 501(c)(3) organization and is equipped to accept stock donations.
- Notify the charity: Contact the charity to let them know about your intention to donate stock and ask for their brokerage account details.
Step 2: Initiate the transfer
- Contact your broker: Instruct your broker to transfer the shares to the charity’s brokerage account.
- Provide details: Give your broker the charity’s name, account number, and DTC (Depository Trust Company) number for electronic transfers.
- Submit forms: Complete any necessary transfer forms provided by your broker.
Step 3: Finalize and claim your deduction
- Document the donation: Keep a record of the transfer, including the date, number of shares, and the fair market value on the date of the transfer.
- Obtain a receipt: Request a receipt or acknowledgement letter from the charity that includes the date, value, and description of the stock.
- Claim the deduction: Report the donation on your tax return, claiming a charitable deduction for the stock’s fair market value on the day of the transfer.
IRA Charitable Contribution
An IRA Charitable Contribution allows you to meet your Required Minimum Distribution (RMD) requirements without adding to your taxable income. This benefits you while supporting the important work of the Choroideremia Research Foundation.
Ask your IRA administrator how best to proceed, because the process can vary from firm to firm.
Qualified Charitable Distribution
Qualified Charitable Distribution (QCD), is a way for individuals aged 70 ½ and older to donate money from their IRA to a qualified charity. This method allows you to meet your Required Minimum Distribution (RMD) without paying income tax on the distribution and is particularly beneficial in light of recent tax code changes that have made it harder for many people to claim charitable deductions. To make a QCD, you must make a complete charitable gift, and the charity must provide a contemporaneous written acknowledgment stating that no goods or services were received in return.
How to make a Qualified Charitable Distribution (QCD)
- Eligibility: You must be age 70 ½ or older at the time of the distribution.
- Source: The donation must come directly from an IRA (traditional, SIMPLE, or SEP).
- Amount: You can contribute up to $100,000 per year (or $200,000 for a married couple, with each spouse taking from their own IRA).
- No Benefits: The gift must be a complete gift. You cannot receive any goods or services in exchange for the donation, such as tickets to a gala or a dinner.
- Documentation: You must receive a written acknowledgment from the charity stating that no goods or services were provided.
Tax benefits and implications
- Tax-Free Distribution: A QCD is not considered taxable income, which can lower your Adjusted Gross Income (AGI).
- Meets RMD: The distribution can be used to satisfy your annual Required Minimum Distribution.
- No Itemization Needed: You do not need to be an itemizing taxpayer to use a QCD.
- Reporting on Taxes: The full distribution amount will be reported on your Form 1099-R. On your Form 1040, enter the full amount in box 4a and the taxable amount (which is zero for a QCD) in box 4b, and write “QCD” next to box 4b.
For more information on making a bequest, gift of stock, gift of life insurance or IRA, please contact Kathi Wagner, CRF’s Executive Director, by email or (800) 210-0233, Ext 5.
Boone Endowment Fund
The Peter G. Boone Endowment Fund was established by the Porter & Boone families in 2021 with an initial gift of $250,000 to support scientific and medical research studies on CHM. Peter is a champion and advocate for those living with CHM. He has participated in the foundation’s fundraising efforts and has served on the CRF Research Committee. Living with CHM himself, his commitment to CRF is also very personal.
The endowment will expand CRF’s ability to fund critical research into CHM and related inherited retinal diseases. Grants will be exclusively awarded to early career investigators who are working towards, or have recently moved to, fully independent positions as investigators, faculty members, clinician scientists or scientific team leaders. In collaboration with the CRF, the families’ goal is to increase the fund to $1,000,000.
To make a donation to help build the Peter G. Boone Endowment Fund, contact Kathi Wagner, Executive Director, at email hidden; JavaScript is required.



